Information Dissemination Through printed materials circulated within the public, health centres and GP surgeries to inform and educate the community, public and targeted groups about SCD.
Baseline Assessment Through individuals, health and research institutions, conduct surveys to find out the prevalence of Sickle Cell in Ireland.
Participatory Seminars Conduct a series of workshops, seminars for capacity building. Sharing of information to encourage positive change.
Self-Support groups We aim to encourage peer led initiatives to encourage the eradication of stigmatisation and self-help. The focus of the self-support groups will help encourage independence, and courage for the young adults afflicted by Sickle Cell Disorder and provide self-confidence and perseverance through the struggles of living with SCD.
Educational Events Lectures on different Sickle Cell themes through educational events, involving medical professionals, Sickle Cell advocates both within Ireland and from abroad will be invited to share knowledge and experiences to the attendees on various themes of Study on Sickle Cell and Thalassemia. These educational events will include the public, frontline staff, medical professionals, carers and families afflicted by SCD.
Focus Groups & Networking
Networking Organising get together family events for patients and their families, carers and volunteers. Making life much simpler and fun while focusing on the positive side. This encourages, social inclusion, outdoor activities and independence for the teenage children. These events may include: Art 4Fun, Football, Music, Dance and Drama, Quizzes, and many more…