Sickle Cell & Thalassaemia Ireland
Sickle Cell & Thalassaemia Ireland is the official organization set up and run by Sickle Cell and Thalassaemia families, patients and volunteers to raise awareness and support of Sickle Cell and Thalassaemia in Ireland through educational workshops, seminars, media, printed information, promoting genetic
Sickle Cell and Thalassaemia Ireland (SCTI) charity number CHY20908 was set up and is run by Sickle Cell and Thalassaemia families, carriers and volunteers to raise awareness of and support for Sickle Cell and Thalassaemia patients and their loved ones in Ireland.
To implement proper awareness programmes that will promote better understanding of Sickle Cell and Thalassaemia: a key factor to quality treatment, improved patient support and research for a cure.
Is to fight the growth of SCD and Thalassaemia in Ireland and create a proper support network between the patients, the community and the health professionals.
What We Do
Awareness is a major necessity in the breakthrough to proper support and treatment of Sickle Cell Anaemia and Thalassaemia. We aim to raise much needed awareness of Sickle Cell disease in Ireland and work in partnership with other health Organisations and professionals in educating the public about SCD and Thalassaemia. Supporting families afflicted by SCD, encourage social inclusion, genetic screening for SCD, Community support, Youth support networks for young teenagers and adults suffering from SCD.
What Is Sickle Cell Disease?
Sickle cell disease is an inherited blood disorder that affects red blood cells. People with sickle cell disease have red blood cells that contain mostly haemoglobin S, an abnormal type of haemoglobin. Sometimes these red blood cells become sickle-shaped (crescent shaped) and have difficulty passing through small blood vessels. When sickle-shaped cells block small blood vessels, less blood can reach that part of the body. Tissue that does not receive a normal blood flow eventually becomes damaged. This is what causes the complications of sickle cell disease. There is currently no universal cure for sickle cell disease.
What is Thalassaemia?
Thalassemia’s are inherited blood disorders characterized by decreased haemoglobin production. causing chronic anaemia. Thalassemia is an inherited (i.e., passed from parents to children through genes) blood disorder caused when the body doesn’t make enough of a protein called haemoglobin, an important part of red blood cells. When there isn’t enough haemoglobin, the body’s red blood cells don’t function properly and they last shorter periods of time, so there are fewer healthy red blood cells traveling in the bloodstream.